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Friday, 27 October 2017

New words

Some of my clients, and all of my friends, are aware of my ongoing struggle with pain. Again something that I'll probably go into in more detail as time goes by, but, for now, I thought I'd share a little bit of my current frustration with you.

Fibromyalgia: widespread pain that is present for at least three months; must occur on both sides of the body, above and below the waist, and along the length of the spine. There must be pain in at least eleven of eighteen specific points in the body.


I've been diagnosed with fibromyalgia. It's still largely a mystery to  health professionals, and used to be used as a I-don't-know-what-is-wrong-with-you-so-let's-diagnose-you-with-this thing. There have been some advances in the understanding of fibromyalgia, like, they can now prove the brain involvement with special MRI scans which would show that the brain perceives pain differently in someone with, as opposed to without the condition. Essentially your body becomes hypersensitive to pain.

The average person takes five years to be diagnosed. This is seriously painful... in more ways than one; going for that long without knowing what is causing your often constant discomfort, having no treatment for it, and usually being told to just 'get over it', is awful.

Because fibromyalgia is still a relatively new diagnosis, and because it's such a vast disorder (symptoms vary from pain in specific tender points of the body, to IBS, to insomnia, to depression), it is often misdiagnosed (for approximately five years). Similar symptoms appear in Rheumatoid arthritis, polymyalgia Rheumatica, Lyme disease, restless leg syndrome (aka Willis-Ekbom disease 😳), ankylosing spondylitis, chronic fatigue syndrome, systemic lupus erythematosus, major depression, thyroid disorders, myofascial pain syndrome, and multiple chemical sensitivity... If you understood all or most of those names, then you're either a well-trained physician, or you've been through the diagnoses wars.

If you're the latter, then my heart goes out to you. I feel your pain. And I wish you a speedy diagnosis, and a very wonderful and friendly doctor that understands your pain, too.

So far, smiling, laughing, and playing around as much as possible has been my best medicine. Doing (and sometimes teaching) yoga helps me to deal with the constant bugging annoyance of pain. Testing my limits every day, to see where my body is at, and, MOST importantly, listening when my body really just needs to rest, even if I feel like I'm just being a lazy poop, or like I'm over-reacting to the pain.









K, I've had enough of talking and typing about pain for now. So, my leaving message: just be kind to your body, dammit. And smile.



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